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Walkstool, Oh How I Love Thee…
Walkstool This is my new best friend: Walkstool Folding Stool Basic 60 Black. I would never have gotten through the trip to Camp Lejeune last weekend if not for this baby. We went down to see my son...
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FM/CFS/ME RESOURCES –‘Fibro Fog’ Isn’t Just for Fibromyalgia Anymore
The memory and concentration problems frequently known as “fibro fog” or “brain fog” are common in fibromyalgia and chronic fatigue syndrome, and new research shows that they’re also common in people...
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Daily Record-Keeping May Boost Fibromyalgia Care
Though this article focuses on Fibromyalgia, I believe it is true of any chronic condition, particularly those with very variable symptoms. I use my iPad and iPhone for this purpose. See the ‘Must...
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Norepinephrine in Fibromyalgia & Chronic Fatigue Syndrome
I find overlaps interesting…so I wanted to link two articles related to norepinephrine in the same post. The first is related to FM/CFS, and the second to POTS (which many people with FM and/or CFS...
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We Are NOT “Lazy”…Got it?
I read this article and totally related. Definitely to the Fibro part, and probably the CFS (I suspect I have this; still working on diagnosis, which is a LONG process of eliminating a bunch of other...
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Tuesday Contortions
Left arm behind back UPDATE: Since writing this post, I have received my official ‘Zebra’ stamp of approval…in other words, have been dx’d with EDS. Good morning….er…afternoon, POTSville! I decided to...
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Gifts Within
A friend shared this, and I found it very compelling. Whatever you believe, spiritually, take this message from that place…or just from within yourself. “On this day, God wants you to know… that there...
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And she was low, low, low, low, low, low, low…
Just not feelin’ it. Well, actually, I am. Feeling rather YUCK. The past three days and nights have been ripe with abdominal pain. It was really horrible this afternoon. A bit better now…hoping for an...
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Always Look on the Bright Side of POTS
(da dum da dum da du du du du dum…) Roufus Hummingbird (my painting in progress, in memory of grandma) Every pot has a shiny side, if you scrub the heck out of it with a Brillo pad. It’s all in our...
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‘Loose Joints’ Highly Associated with Migraine
Interesting article…seems that hypermobility is related to a majority of my issues. ‘Loose Joints’ Highly Associated with Migraine [Note: Other research indicates hypermobile joints and migraine are...
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Sea how it goes…
My doctor’s appointment yesterday went well. It was mostly routine, but we upped my dosage of Cymbalta (which, for those of you coming across this without earlier knowledge, I take primarily for pain)....
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POTS: Pathophysiology, Diagnosis & Management
This article was posted in Living With Pots, a wonderful support group mainly aimed at research study (by we, the potsy patients, as we scour the internet for the latest and greatest information...
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A chart comparing symptoms of fibromyalgia & CFIDS to Chiari malformation &...
A chart comparing symptoms of fibromyalgia & CFIDS to Chiari malformation & cervical spinal stenosis. The above link takes you to a pretty comprehensive chart, which I found both interesting...
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Embracing the unexpected
I am about to do something I could not have even imagined doing earlier this morning, when I awoke for pain meds, a small snack, and the intent to return to bed…and was greeted with a comment awaiting...
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My Oasis
This retractable pool enclosure is like a greenhouse that you can open all the way up on a hot day, or keep closed and swim when there is snow on the ground! Swimming is my primary therapy, so being...
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Do I smell like two old goats?
Actually, the lotion smells very good…just herbs. It does not trigger my Hemiplegic Migraines, and it is good stuff…all these are great! This is my night table full of neuropathy creams, etc. All are...
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Dysautonomia Information for Loved Ones
This is a great article to share with family and friends to help them understand what it is like to live with Dysautonomia HELPING YOUR LOVED ONES UNDERSTAND DYSAUTONOMIA What is Dysautonomia/POTS:...
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Autism and Fibromyalgia: Can they be Linked as an “Auto-Immune” Disorder...
There have been several interesting articles on Fibromyalgia lately; this is one of them. On a personal note, I have every one of the conditions listed as part of the “Dysregulation Spectrum Syndrome”...
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Methylenetetrahydrofolate Reductase (MTHFR)
This is a very interesting, intensive sight, well worth a thorough study, in my opinion. A Facebook friend reminded me about it tonight, so I am taking the opportunity to pass it along. It may take...
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PrettyIll.com Video: POTS and Dysautonomia
PrettyIll.com is a site for resources, advice, and camaraderie involving connective tissue disorders. Dr. Diana, both a doctor and a patient, offers help and hope for Multiple Sclerosis, Ehlers-Danlos...
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From Chronic Fatigue Syndrome to Fibromyalgia To POTS To Success: One Woman’s...
Sjögren’s syndrome (Photo credit: Wikipedia) From Chronic Fatigue Syndrome to Fibromyalgia To POTS To Success: One Woman’s Journey Through the Medical Profession – Health Rising. Lauren and I...
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My Oasis
This retractable pool enclosure is like a greenhouse that you can open all the way up on a hot day, or keep closed and swim when there is snow on the ground! Swimming is my primary therapy, so being...
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Trigger Points Tutorial
Trigger Points TutorialFiled under: Arthritis, Autoimmune, Disorders of the Spine, Dysautonomia, Ehlers Danlos Syndrome, invisible illness, Migraine and Headaches, Neurology, Sjögren's, Strategies For...
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